Stories of children diagnosed with life-limiting conditions and stories of pregnancy and child loss.

Whether earth side or in the stars, these stories share a theme. Of a love beyond all other, of kindness and - despite it all - of hope. If you find yourself here because you too are experiencing a child’s life limiting diagnosis or a great loss, we hope these stories help you to feel less alone. This is a place to rest your weary heart, linger for a while - among those who know what it really feels like.

A word of warning, these stories may be distressing, and we encourage you to seek support if needed click here for more.

life-limiting PRIYANKA SAHA life-limiting PRIYANKA SAHA

Felix’s story

When Felix was born everything was ‘normal’ until a rude encounter with the community child health nurse set Clare and her husband Mark on a path of medical investigation to a diagnosis that no one expected.

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