Stories of children diagnosed with life-limiting conditions and stories of pregnancy and child loss.
Whether earth side or in the stars, these stories share a theme. Of a love beyond all other, of kindness and - despite it all - of hope. If you find yourself here because you too are experiencing a child’s life limiting diagnosis or a great loss, we hope these stories help you to feel less alone. This is a place to rest your weary heart, linger for a while - among those who know what it really feels like.
A word of warning, these stories may be distressing, and we encourage you to seek support if needed click here for more.
This is the story of James and Poppy
This is the story of James and Poppy. Written by their mother who had HELLP Syndrome during her pregnancy, a severe and life-threatening form of preeclampsia.
Charlotte and Greer
Charlotte is the mother of twins Greer and Tavish. In this honest and raw blog post, Charlotte shares the reality of parenting twins where one has a life-limiting condition. Charlotte shares that sometimes it is ok to not be ok.
Roni’s story
Roni was born at 24 weeks and lived for just 9 days before her parents had to say goodbye. This is her mother’s story of learning to live with loss and choosing love after loss.
Lessons from Lucy
Lucy was diagnosed with Miller Dieker Syndrome, just like Lily Calvert. Lucy’s mother started a blog called ‘Lessons from Lucy’, which MTM founder, Priyanka Saha discovered in the early days of Lily’s diagnosis. Lucy’s story became a guiding beacon for Priyanka and Lily’s family and it is our honour to share her story on The MTM.
Everett’s Story
Kirsty shares the story of the birth of her son Everett who died after an emergency c section. Kirsty gives us insights into how she survived after loss and how she learnt to find hope and smile again after Everett’s death.
Louis’ Story
Louis was born on 4th April 2018, after a healthy pregnancy. Louis’ parents had no idea anything was wrong until one day he stopped breathing. Then began a journey that changed their lives forever.
Bodhi’s Story
Alysha lives on the beautiful Gold Coast with her fiancé Trent and darling 15 month old son Bodhi who has a life limiting condition. She shares Bodhi’s story and the journey they have been getting a diagnosis and learning to live with new expectations for Bodhi’s life.
Noah’s Story
Amy Trojer is Noah, Hudson and Leo’s Mother. She is a nurse and she shares her story of loving Noah who lived for just 12 days.
Maeve’s Story
Maeve was Kirsten’s first born. On the day she was born her parents were told she had an incurable brain disease. Maeve was a bringer of light and love in her 444 days on earth.
Billie’s Story
Billie’s mother shares her story of beautiful Billie who died from Enterovirus only 11 days after birth.
Harper’s Story
Kimberley shares the story of her daughter Harper who was born with an unknown life limiting illness. Harper is now 20 months old and she has had a big impact on everyone she has met.
Keira’s story
Kiera was born on 4 May 2020 after an uneventful textbook pregnancy. Kiera’s mother and father never could have imagined that she would not make it through her first night.
Felix’s story
When Felix was born everything was ‘normal’ until a rude encounter with the community child health nurse set Clare and her husband Mark on a path of medical investigation to a diagnosis that no one expected.
Ivy’s story
What do you do when you have your beautiful, long awaited baby daughter; and then she dies at only six days old? Katie never imagined she and her husband Stew would have to answer that question.
Eva’s Story
Eva’s mother says ‘I never knew how dark the world could appear on a bright summer day until the moment we received Eva’s terminal diagnosis.’
Eva was born with Miller Dieker Syndrome and lived for 22 days.
Eve’s Story
Felicity is Eve’s mother, Eve was born without breath during the height of the COVID19 pandemic. Felicity shares her experience of losing a baby and the heart ache of grieving alone in global pandemic. She shares advice for pregnancy after loss and learning to hope again.