Stories of children diagnosed with life-limiting conditions and stories of pregnancy and child loss.
Whether earth side or in the stars, these stories share a theme. Of a love beyond all other, of kindness and - despite it all - of hope. If you find yourself here because you too are experiencing a child’s life limiting diagnosis or a great loss, we hope these stories help you to feel less alone. This is a place to rest your weary heart, linger for a while - among those who know what it really feels like.
A word of warning, these stories may be distressing, and we encourage you to seek support if needed click here for more.
Bodhi’s Story
Alysha lives on the beautiful Gold Coast with her fiancé Trent and darling 15 month old son Bodhi who has a life limiting condition. She shares Bodhi’s story and the journey they have been getting a diagnosis and learning to live with new expectations for Bodhi’s life.
Harper’s Story
Kimberley shares the story of her daughter Harper who was born with an unknown life limiting illness. Harper is now 20 months old and she has had a big impact on everyone she has met.
Felix’s story
When Felix was born everything was ‘normal’ until a rude encounter with the community child health nurse set Clare and her husband Mark on a path of medical investigation to a diagnosis that no one expected.