Stories of children diagnosed with life-limiting conditions and stories of pregnancy and child loss.
Whether earth side or in the stars, these stories share a theme. Of a love beyond all other, of kindness and - despite it all - of hope. If you find yourself here because you too are experiencing a child’s life limiting diagnosis or a great loss, we hope these stories help you to feel less alone. This is a place to rest your weary heart, linger for a while - among those who know what it really feels like.
A word of warning, these stories may be distressing, and we encourage you to seek support if needed click here for more.
Louis’ Story
Louis was born on 4th April 2018, after a healthy pregnancy. Louis’ parents had no idea anything was wrong until one day he stopped breathing. Then began a journey that changed their lives forever.
Noah’s Story
Amy Trojer is Noah, Hudson and Leo’s Mother. She is a nurse and she shares her story of loving Noah who lived for just 12 days.
Maeve’s Story
Maeve was Kirsten’s first born. On the day she was born her parents were told she had an incurable brain disease. Maeve was a bringer of light and love in her 444 days on earth.
Harper’s Story
Kimberley shares the story of her daughter Harper who was born with an unknown life limiting illness. Harper is now 20 months old and she has had a big impact on everyone she has met.
Eva’s Story
Eva’s mother says ‘I never knew how dark the world could appear on a bright summer day until the moment we received Eva’s terminal diagnosis.’
Eva was born with Miller Dieker Syndrome and lived for 22 days.